Our Story

    On November 5, 2023, our lives changed forever when our daughter Emily was diagnosed with B-Cell Acute Lymphoblastic Leukemia. Because Emily was 15 and had Down syndrome, she was considered high risk. 

    We knew when Emily was born that because of her Down syndrome diagnosis there was always a chance that she could one day have leukemia. Because of this statistic, we were surprised that the treatment available for Emily continually has to be modified as it is more dangerous for patients with Down syndrome.

   We believe that more research should be done to change the treatment protocol to make it safer for patients with Down syndrome so that they are not left in the hospital longer and can have a better quality of life during their course of treatment as their typical counterparts. We will advocate to increase funding to make this happen. 

   We also understand the reality of this journey of cancer and Down syndrome and want to support the patient and their family during this time. 

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     Our Mission

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   We exist to enhance the lives of individuals with Down syndrome who have a leukemia diagnosis by encouraging the funding for research of treatment protocol, as well as providing assistance and resources to patients and their families during their cancer journey.

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